An evaluation of the first 10 years of the reproductive survivorship clinic.
Protocol development- Full protocol developed
Ethics status – Ethics application only required for part 3 and 4 which will be submitted in May. Part 1 and 2 of the study can be started on July 1st.
Study Team – Dr Anazodo Anazodo, Prof Richard Cohn, Dr Rebecca Dean, Ms Karen Johnson, Dr Kristen Neville, Ms Sumin Choi.

Adolescent and young adult cancer survivors need reproductive follow up following cancer treatment, to ensure that they receive an assessment and treatment of reproductive complications of cancer treatment, receive support for family planning, fertility preservation or ART decisions and receive reproductive related psychological support as required. Sydney Children’s Hospital developed the first reproductive survivorship clinic ten years ago, providing consultation on sexual health, sexual dysfunction, gonadal failure in males and females as well as infertility management.

Hypothesis

Childhood and adolescent cancer survivors need reproductive follow up in the survivorship period, to ensure that they receive an assessment and treatment of reproductive complications of cancer treatment, receive support for family planning, fertility preservation or ART decisions and receive reproductive related psychological support as required.

Aims:

To evaluate the first 10 years of the reproductive survivorship clinic and explore the different reasons why male and female adolescent and young cancer survivors are consulted.

• To document the outcomes from reproductive clinic assessments (reproductive complications of cancer treatment, contraceptive advice, advice and support with family planning, reproductive psychological outcomes of cancer survivors) in adolescent and young adult cancer survivors between 1st January 2006 and 31st December 2015.
• To evaluate the patient, parent and partner experience of the reproductive concerns survivorship clinic.
• To develop reproductive survivorship patient reported outcome measures that can be used to document symptom burden, appropriate referral pathways and support requirements.

Methods

Stages:

1. The research team will conduct a literature review on the medical and psychological reproductive late effects of cancer treatment.
2. The research team will review the patient records held by the Reproductive Concerns Survivorship Clinic between 1st January 2006 and 31st December 2015 and document data in a number of categories (cancer treated, age of cancer patients at diagnosis, age of cancer patient when seen in the Reproductive Survivorship Clinic, number of clinic visits of each patient, information on the reproductive risk of the treatment (low, medium or high), reason for consultation in the reproductive survivorship clinic, assessment of reproductive function following cancer treatment, FP before or after cancer treatment, family planning intentions and use of ART.
3. The research team will develop a questionnaire to evaluate the service and look at how the service can be further developed in patients who have reproductive concerns.
4. The research team will develop patient reported outcome measures that can be used in this clinic to document symptom burden, appropriate referral pathways and support requirements.
5. Implementation of the patient reported outcome measures.
6. The data will be summarised for publication.